Carmen is doing a little bit better. Her breathing is more even and she is resting. I have been giving her morphine and ativan when she seems distressed. The prednisone is puffing her up but it may also be helping.
My sister-in-law and her three kids left today. We had loads of fun! Never a dull moment with the cousins!
Last night we took the girls and my sister-in-law and kids to a womens’ shelter to help serve a meal. A friend of mine fixes meals for the women on a regular basis and asked if some of the MOPS moms wanted to join her. We brought sodas and helped where needed. They had plenty of help so I am not sure they actually needed us but it was a good experience to get out of our comfort zone. Several of the women asked about Carmen and I am always happy to explain a bit about Tay Sachs. I was debating not going simply because Carmen is not doing well but then decided that we should go. There is nothing more rewarding than serving others.
We got a most wonderful package in the mail yesterday! Diane, mom to three boys and a daughter from Guatemala, sent Carmen and Lauren gifts. The girls got matching Gymboree dresses and sunglasses and hats and hair clips. Carmen got a cute soft stuffed bear and Lauren got a water bottle with her name on it and a really cool book with animals that move (holographic?). I have to say that this package came at the perfect time. Diane’s thoughtfulness brightened up our day! Thank you.
My mother-in-law and father-in-law are coming down tomorrow for the 4th of July weekend. We talked about driving up to New York but decided it was too much with Carmen not doing well. So, they decided to come to us instead!
Congratulations to my brother, Kevin, for winning Employee of the Month at Target! Great job on all your hard work!
One year ago today, we took Carmen to the ophthalmologist and the retina specialist and found out something was very wrong. I remember the retina specialist saying he was very sorry and I said something like, “No, I am just happy to find out what is wrong!” I had no idea.
