Comments (1) Last night, Molly Grace went to be with Jesus. Molly had Tay Sachs and was six years old. If you would like to leave her family a message, click here for Molly’s site.
I have always been inspired by Molly’s mom and dad. They took care of Molly with no nursing care help. I often prayed for strength and rest for this family. Today, I pray for comfort.
Molly with her mom
Elise, a six year old with Tay Sachs, is not doing well right now. Her dad posted this on her caringbridge site today:
I hate to write this, but we need to. Elise is doing really bad now. Her O2 sats are not coming up, and she is severely anemic. We can’t do much else for her now except keep her comfortable and prepare for the end. I wish we didn’t have to let her go, but it has to happen, I guess. We’ll let you know what happens as time progresses. She’s on oxygen and just had some morphine to help calm her. —John
Elise’s 7th birthday is a week from Friday. Please pray for Elise and her family. I am praying that Elise will pull through this and her family will be able to joyfully celebrate her 7th birthday. And I’m praying that Elise will be comfortable and that her family will feel God’s love, comfort and peace.
Update Tuesday night from Elise’s parents:
With an aching heart…Elise officially earned her angel wings at 7:07 p.m. She was being held by John and I as she took her last breath, surrounded by her loving family and friends. Rest in peace Sweet Angel.
God will heal Carmen. I am 100% sure of that. The moment she enters Heaven, she will have a perfect body. I think we often focus so much on earthly healing and forget that this life is just a moment. Carmen has eternity in front of her. She is going to leave this messed-up world and enter perfect Heaven. And that’s OK. In fact, it’s more than OK. It’s a blessing in her life.
Until that time, I am convinced that God gets great pleasure out of Carmen’s little life and that He sees her as truly beautiful, just the way she is.
A recent picture Dave took of Carmen, with the light streaming from the window.
Recently, Lauren and I had the following conversation:
Lauren: After Carmen dies, I want to take a picture of her to school to show Mrs. A.
Me: Why?
Lauren: When Jenna’s dog died, she brought a picture of her dog to school.
Me: OK.
Lauren: I hope Carmen doesn’t die on a school day.
Me: Why?
Lauren: I want to say goodbye to her.
Me: If Carmen dies while you are at school then we will keep her body here until you get home. She will be in Heaven but you can say goodbye to her body.
Lauren: OK!
Sometimes I cannot believe the conversations I have. Most kids in America experience death when a pet or older grandparent dies. Not their younger sibling.
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Please pray for poor Lauren who is not feeling well today. She stayed home from school because she was so very tired this morning. Tonight she said her ear hurts so Dave will most likely need to take her to the doctor tomorrow.
Sometimes when life is tough, I think it is helpful to realize that we are not alone in grief and hardship. And that others have walked before us and survived.
Watching my child die of Tay Sachs is the hardest thing I have ever gone through. Specifically, the day Carmen was diagnosed was the worst day. Just reading the description of Tay Sachs made me want to throw up.
What is the hardest thing you have ever gone through?
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