Make-A-Wish Trip: Day 1

Prayer request: Betty Short, one of the Beautiful Canvas community “members”, emailed us and asked for prayer for her son-in-law’s brother and his wife. They are expecting a new baby (will be born tomorrow!) and the baby has a cleft palette. The family is praying for total development, complete healing of any deformities or troubles, and sound body, soul and mind. Please keep this family in your prayers!

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Monday, August 24, 2009 we got up early and packed our minivan. Since we were already in upstate New York at the NY Grandparents’ house, we had about 6 hours to drive to Cape Cod. Carmen had been sick with pneumonia for 4 days but seemed to be doing better. So, off we went!

We really should have taken a picture of the minivan! According to Lauren, it was packed to the tippy-top. I think we had about 10 bags of just Carmen’s stuff. Medicines, medical supplies, chux pads, diapers, formula, feeding pump, nebulizer equipment, oxygen tanks, the Vest, suction machine, a bath chair, pediatric stroller, etc. I told Dave that I think we need to buy an RV to transport Carmen’s stuff around. (Several of the families with children with Tay Sachs travel in RVs and I think that is such a good idea!)

We decided to stop near Boston and visit Uncle Steve, Aunt Sarah and Nathan. They live in an adorable log cabin that really made us want to get out of planned communities and find a house with character. It was a short visit but was really fun.

After a long day, we arrived at Ocean Edge Resort and Golf Club in Brewster, MA. Connie, Carmen’s night nurse, was waiting at the hotel for us. Make-A-Wish flew her to Providence, RI and then provided a stretch limo for her two hour car ride! We were very happy to see Connie as we were very sleep-deprived from taking care of Carmen at night, especially since she had been so sick.

We went to bed early as we wanted to be well-rested for our week of adventures!