Archive - March, 2009

Cereal Bowl

Carmen update: Carmen has quite a few things going on. Despite increasing her seizure medication, she is still having many seizures each day. They are small ones so I think we will wait a few days and see if they continue. Carmen’s C-diff test came back positive again. Surprise, surprise, huh?! In the next day or so, we will start a  four day cleansing regimen with Miralax and then move on to 6 weeks of Vancomycin. The doctor wants liquid Vanco this time around so we have to find a pharmacy that will compound it that will take insurance. We keep giving Carmen probiotics: VSL#3 and S. Bourlardii. Carmen is having problems with swelling. Every few weeks she swells up. Her hands, feet and face will be extremely puffy. After a few days, she goes back to normal. Her doctor ran a bunch of tests and everything came back normal. No one seems to know why she keeps swelling up.

Thank you for your continued prayers for a new nurse for Carmen. Once we have something definite, I’ll update on the situation.

Recently my MOPS group met at a pottery painting place. I painted a cereal bowl for Lauren. Today was the first day she ate out of it. Here’s a picture.

Lauren's New Cereal Bowl

Prayers Needed for New Nurses

We are very sad to say that Carmen’s wonderful nurse, Connie, is moving away. This coming Saturday is her last night with Carmen. Six months ago Connie came into our home and from day one wanted to know how she could make our lives easier. She loves Carmen and we all love her. After meeting Connie, Lauren decided she wants to be a night nurse when she grows up! Connie has loads of experience with children, is friendly and easy-going, extremely competent and knowledgeable, and just an all-around fabulous nurse.

Connie works 48 hours per week for us and our other wonderful nurse, Susan, works 36 hours per week. Although they don’t work together, these two totally complement each other. We have had a wonderful night-nursing experience for the past six months.

The nursing agency is trying to fill Connie’s 48 hours. Please, please pray that we find fabulous nurses. We have had some horrible night nursing experiences and really, really don’t want to go through that again.

Spring Forward!!!

Don’t forget to set your clocks one hour ahead before you go to bed tonight.

Lauren and I enjoyed a gorgeous spring afternoon at the park today. Here is a picture of Lauren on the swings.

Lauren Swinging

Perspective

This week has been a tough one for me. Nothing earth-shattering happened, just a lot of stressful stuff. I spent a couple of days really down about how Carmen’s illness is affecting Lauren. Most of the time I focus on the positives- because of Carmen, Lauren is learning to be compassionate, caring, etc. But this week I let myself think about all the things Lauren is missing. Normal stuff like playing at the park with her sister. Or just getting to go to the library on a regular basis.

Today, the girls and I went to Children’s hospital to drop off a stool sample. We had to wait awhile so Lauren was hopping around, talking to the nurses. Suddenly she turned to me and said, “Mom, guess what I just told Carmen!” As usual, I didn’t guess correctly so Lauren said, “I told Carmen that she is my very best friend in the whole wide world.”

My girls both have a way of putting everything in perspective.

Thanks to Laurie for your wise words today. Thanks to all the families with children with Tay Sachs and related diseases who understand everything.

Miracle Series – Money, Moolah, Dinero

Dave and I rarely talk about money with other people so this post is a bit out-of-character. However, we want to give God credit for the work He did/is doing in Carmen’s life.

Carmen’s adoption process cost roughly $28,000. When we started the adoption process in January 2006, we did not have $28,000 sitting around. We had purchased a home recently and spent everything we had on a down payment. So, there we were, starting an expensive international adoption with no apparent way to pay for it. I remember feeling stressed about the whole situation and thinking that we were dumb as dirt to jump into this. But, we felt God’s leading so we forged ahead.

We talked about getting a loan or doing some fund raising to pay for the adoption. We started feeling that we shouldn’t do either but should simply wait on God because He had something else in mind.

And, wow, did He ever!

In March 2006, Dave (who was contracting at the time) was unexpectedly paid for some extra work he had done previously. His contract stated that he would be paid for 40 hrs/week but he actually worked a LOT more during the previous months. $12,000. Later in the year, after Dave transitioned from contracting to a full-time position with the same company, Dave asked someone in his HR department if the company offered adoption benefits. It didn’t. However, the HR representative did mention that they were thinking about adding that benefit in 2007, which would at least be nice for the next adoption. Wouldn’t you know it, his company did implement adoption benefits beginning in 2007 but…decided to make the benefits retroactive to the fourth quarter of 2006 so that we would receive the benefit for Carmen’s adoption, which was finalized in December 2006. $5,000. Finally, since Carmen’s adoption was finalized before the end of the year, we were able to immediately file for the adoption tax credit for both the IRS and Maryland in February 2007. $11,000.

$12,000 + 5,000 + 11,000 = $28,000

Sometimes I think God likes to show off. He could have provided half the money and we would have found a way to pay the rest. Or He could have provided more than we needed. But, no, He provided exactly what we needed.

Whenever I start having thoughts that we sure could use that $28,000, I remind myself that it was never our money to begin with. God specifically provided it for a little girl named Carmen. And I think He provided it to give us yet one more proof that He took care of us then, is taking care of us now and will continue taking care of us into the future.

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