Comments (4)

By Lana, January 31, 2009 12:39 pm

Thank you for your prayers! Lauren had a 102 fever last night but is doing better today. Carmen seems fine but we will keep praying that she doesn’t catch the virus! Carmen has an appointment on Monday with Infectious Disease to hopefully find something that will get rid of the C-diff. She did not do well with Vancomycin (severe yeast infection) so I really hope that is not our only option.

Thank you for introducing yourselves on http://www.beautifulcanvas.org/2009/01/who-are-you-2/. We loved reading your stories! It means a lot to us that so many are following Carmen’s story.

Carmen has amazing hair. Especially for a two year old. Carmen’s hair is very thick, shiny and jet-black. She totally has Pantene commercial hair! Dave took this picture a couple of months ago. I thought you might like to see a different side of Carmen!

Comments (9)

By Lana, January 30, 2009 12:59 pm

Lauren has come down with a virus. She has a nasty cough and fever. An x-ray showed that she does not have pneumonia. So far, Carmen is perfectly well. Please pray that Lauren gets over this fast and that Carmen stays well! And that Dave and I stay well too!

Thanks to Monica the Marvelous for playing with Lauren and watching the girls so I could go to the pharmacy. Thanks to Karen for the yummy salad and corn casserole. And thanks to Roxana for the cornbread. I have some yummy soup that needed cornbread!

Poor Lauren, feeling horrid

Sleeping Carmen

Comments (5)

By Lana, January 29, 2009 1:53 pm

After yesterday’s post about things I miss, I was looking through some pictures.

This was on Carmen’s 1st birthday, July 20, 2007, a couple of weeks after we found out that she most likely had Tay Sachs.

“I wonder what is in this package?”

“I want my present!”

“Now, I’ve got it!”

I never thought that would be the last time I would see Carmen reach for something. I am glad I took a picture! Take more pictures!

Comments (5)

By Lana, January 28, 2009 8:24 am

I don’t often sit and think about the way Carmen used to be. But today Lauren commented that she wishes Carmen could still laugh and play with her. So, I started thinking about the things I miss.

I miss Carmen waking up in the middle of the night and talking so loudly to herself that we all woke up. Da-da-da, ga-ga-ga. She could go on and on for hours! Most of the time one of us would get up and give her a bottle just so she would go back to sleep and we could all get some rest!

I miss her giggles in the car. We would go for Sunday afternoon drives and she would laugh and laugh. I think it was the sunlight hitting her face that made her laugh. I really wish we had videotaped that!

I miss feeding her butternut squash. She LOVED butternut squash.

I miss hearing Carmen wildly playing with the wind chimes on the activity gym. She would grab those things and make such a racket.

I miss seeing her big smiles when she saw something she liked. Shortly after we brought her home from Guatemala, I took her to the store. I held a big red puppy in front of her and she laughed out loud. So, I bought it. I’m glad I bought it.

I miss finding her all over the house. She never crawled but she would roll and scoot herself around. One time she started fussing and I found her on top of the floor AC vent! She had scooted herself into the corner and couldn’t back up.

I miss going into her room each morning and popping my head over the crib railing and seeing her big smile.

I miss hearing her burst out laughing when Dave would kiss her neck.

I miss seeing Carmen and Lauren playing together. Lauren would sit next to Carmen and hand her one toy after another. Sometimes Lauren would take a toy away from Carmen and Carmen would silently hold her arms out, hoping to get the toy back.

I miss seeing her pull Lauren’s hair. That sounds strange but Carmen was fascinated by Lauren’s long hair. Lauren would bounce by (Lauren does not walk, she bounces) and Carmen would grab her hair. It always reminded me of a frog grabbing a fly out of the air. She was that fast. Dave happened to take a picture of Carmen pulling Lauren’s hair. We were at last year’s Tay Sachs family conference. Carmen wasn’t able to purposefully move by that point but somehow got her finger stuck in Lauren’s hair.

Tay Sachs is horrible. I hate that so much of Carmen is gone. I miss Carmen.

Comments (7)

By Lana, January 27, 2009 3:37 pm

Mission accomplished!!! No laughing at Mr. Snowman. The 5 year old bailed out on me because she was too cold. I had a grand time all by myself in the snow, building Mr. Snowman!

I hope you are having as much fun today! Ha, ha!