Out-of-control Seizures
Carmen’s breathing is better but her seizures are out-of-control. I spoke with her neurologist today and we can increase her Phenobarbital once more. I think she had about 10 cluster seizures in the past 24 hours that lasted 8-12 minutes each. And, she had a few seizures where she screamed. For a child who no longer vocalizes at all, that sound is very frightening. Lauren is completely used to seizures and she asked if Carmen was ok after the screaming seizure.
Dave is going to be switching hosting companies for our website soon so our site might be down for a couple of days. Hopefully the new company will be better about staying up and running!
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