Carmen and Lauren are both doing much better. Carmen is on her second day of Zithromax and is responding well. Her biggest issue right now is uncontrollable secretions. She is soaking thru several bibs per day. We tried the Scopolamine patch and it worked really, really well for a few weeks and then became completely ineffective. I guess we will go back to Robinul to dry up secretions. Last night Carmen’s nurse said she sounded like she was drowning. I hate this. One day one thing works and then the next it no longer works. She can be on an insanely high dose of a drug, larger than an adult dose, and have no relief at all from symptoms. And we have never found anything to help reduce her strider (LOUD breathing sounds). After listening to her distressed breathing all day, I often want to scream. Not out of frustration at Carmen but out of complete frustration that there is not a thing I can do for her.