Carmen’s seizures have come back in full force. We got them under control with Phenobarbital for a couple of weeks and then a few days ago, she started having small ones throughout the day. Facial twitches, 2-3 minute shaking, holding her breath until starting to turn blue, etc. Yesterday, the big ones started again. From what I have read, it seems that Carmen is having tonic-clonic seizures in clusters (formerly called Grand Mal seizures). I emailed her neurologist and she is going to call me today.

I sure hope this isn’t a pattern. We add a new seizure medication and Carmen’s seizures stop for a couple of weeks. Then, new and different seizures start. Then, the bad ones start again. Not fun.

I just got an email from Carmen’s neurologist and we are going to increase her Phenobarbital to 7 mls, twice per day. Hopefully this will get the seizures back under control.