We are HOME! Carmen was discharged this afternoon. She sounds like she is in horrible distress but her heart rate is back to normal and oxygen levels are fine. She took an afternoon nap and was at 99% oxygen and 100 heart rate, which is fabulous! We are to keep her away from other children until she is cleared by Dr. Pedreira so I will take her back to the doctor on Monday or Tuesday.

Thanks to Michelle for dinner and to Claudia and Eric for the yummy cake! I can see why that is your favorite German dessert!

I can’t remember if I mentioned that my father-in-law is here to help with Lauren and whatever we need. He is always ready and willing to jump in the car and drive 6 ½ hours from New York to help us. He is a huge help and Lauren LOVES having her Grandpa here to play tea party and tent and Prince and Princess. Thanks Doug!

I will be typing up a summary of our Florida trip to the NTSAD conference (Tay Sachs conference) and to Disney World, so stay tuned!