Sorry for the lack of updates! Just as Dave and Lauren got well, I got sick! Wednesday, my father-in-law drove from New York to help me with the girls. I feel a lot better now and as long as Carmen stays well, we will be going to the NTSAD (National Tay Sachs and Allied Diseases) annual family conference in Florida. We are very much looking forward to meeting other families and spending time in sunny Florida. I have about a million questions about how best to care for Carmen.

Carmen continues to have seizures despite the increase in seizure medications. Hopefully we will find something that helps her. She stops breathing during seizures several times per day but always snaps out of it without intervention.

Carmen finally got her Kid Kart adapted stroller this week! I am happy to say that we really like it. Carmen seems very comfortable and breathes well in her stroller. Plus, it is nice to have her sitting high up so she can be part of meal-time and other activities. A different headrest has to be ordered because the tiny one that was originally ordered does nothing to keep her head in place. In the meantime, we have her pink doggy Critter Piller wedged into the seat to keep her head upright!

For those who attend our church, check out page 16 of the new Connections magazine! Susan did a great job interviewing us and writing the article and thanks to Melanie for letting COR use the pictures! Lauren was THRILLED to see herself in a magazine. The article is about our involvement in small groups in our church and our journey with Carmen.

Thanks to Monica for watching Carmen this week while Grandpa and I took Lauren to the dentist! I really do not know what I would do without our Hospice Angel!

Ritha, Salih and Bianca, I hope you enjoyed the Easter presentation! I am sorry I missed it but I did not want to cough all over everyone!