The good news is that Lauren is feeling much better! She must have had a 24 hour virus as she is now mostly back to normal. Bad news is that Dave is starting to feel sick. Really good news is that Carmen is fine so far.

Carmen’s seizures are still bad. She had three today and one lasted 11 minutes. I wouldn’t worry so much because they don’t seem to bother her anymore but she stops breathing at the end of each one and that is SO scary! It’s scary to live in a constant state of possible emergency.

Someone asked me which part of Carmen’s care is the most difficult. For now the hardest part for me is always being on alert. I know by her breathing and the sharp intakes of breath when a seizure is beginning. I know if she is properly supported while sitting and how her breathing sounds if she is slumping. I can listen thru the monitor and know she is asleep when her breathing relaxes. I watch her out of the corner of my eye. I feel like I KNOW this child. I don’t think I have ever listened for Lauren’s breathing or watched Lauren like a hawk. Very different parenting a healthy child versus a medically fragile one, that’s for sure.

We could sure use some prayers here! Lauren threw up and had 101 fever tonight during our church small group meeting (sorry Tina, I hope you don’t catch this!). She is asleep now. Please pray that Lauren will get better quickly and that Carmen will NOT get this bug. We don’t want to get it either but I worry most about Carmen getting sick.

I spoke too soon about the seizure meds working. Carmen is continuing to have daily seizures that last about 3 minutes and she stops breathing for a short period. These seizures are so scary!