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By Lana, March 23, 2008 9:02 am

Happy Easter! We have a full house with Great-Grandma, Grandpa, Grandma and Aunt Ruthanne! Hope you all have a wonderful Easter Sunday.

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By Lana, March 22, 2008 9:01 am

Sorry for the lack of updates! Just as Dave and Lauren got well, I got sick! Wednesday, my father-in-law drove from New York to help me with the girls. I feel a lot better now and as long as Carmen stays well, we will be going to the NTSAD (National Tay Sachs and Allied Diseases) annual family conference in Florida. We are very much looking forward to meeting other families and spending time in sunny Florida. I have about a million questions about how best to care for Carmen.

Carmen continues to have seizures despite the increase in seizure medications. Hopefully we will find something that helps her. She stops breathing during seizures several times per day but always snaps out of it without intervention.

Carmen finally got her Kid Kart adapted stroller this week! I am happy to say that we really like it. Carmen seems very comfortable and breathes well in her stroller. Plus, it is nice to have her sitting high up so she can be part of meal-time and other activities. A different headrest has to be ordered because the tiny one that was originally ordered does nothing to keep her head in place. In the meantime, we have her pink doggy Critter Piller wedged into the seat to keep her head upright!

For those who attend our church, check out page 16 of the new Connections magazine! Susan did a great job interviewing us and writing the article and thanks to Melanie for letting COR use the pictures! Lauren was THRILLED to see herself in a magazine. The article is about our involvement in small groups in our church and our journey with Carmen.

Thanks to Monica for watching Carmen this week while Grandpa and I took Lauren to the dentist! I really do not know what I would do without our Hospice Angel!

Ritha, Salih and Bianca, I hope you enjoyed the Easter presentation! I am sorry I missed it but I did not want to cough all over everyone!

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By Lana, March 20, 2008 9:00 am

Happy 20th month birthday Carmen! You are so sweet and so content and we love you lots!!!!!!!!!!!

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By Lana, March 15, 2008 8:59 am

Dave and Lauren are FINALLY feeling better! I aired out the house yesterday and cleaned everything with Clorox and Lysol so hopefully I have killed the germs in here! Thanks to everyone for your prayers. So far, Carmen and I are feeling well.

Couple of nights ago, Lauren woke up and asked for water. After she took a sip, she said “Delicioso!” and immediately went back to sleep!

Thank you to our friend, Indira, for bringing dinner tonight! The chicken noodle soup was yummy and the biscuits were perfect! Tell C.F. thanks for plucking the chicken and we hope he enjoyed his biscuit!

Just for fun, here’s a recipe that I recently found. I have made it twice, once for a party and once for a new mom. It’s yummy!

Moroccan Meatballs with Apricots, Tomatoes, Almonds and Rice
1 lb. lean ground beef
¾ tsp. salt, divided
¼ tsp. ground cinnamon
¼ tsp. black pepper
1 Tbsp. olive oil
1 small onion, diced
1 cup sliced dried apricots
½ tsp. red pepper flakes
½ tsp. ground ginger
1 large can (28 ounces) diced tomatoes, undrained
Basmati Rice
¼ cup sliced almonds, toasted

1. Preheat oven to 325 degrees.
2. Combine ground beef, ½ tsp. salt, cinnamon and pepper in bowl. Shape into 1 inch balls. Heat oil in large skillet. Add meatballs, brown on all sides. Remove to plate. Add onion and apricots to skillet. Cook 5 minutes or until onion is tender. Stir in tomatoes with juice, remaining ¼ tsp. salt, pepper flakes and ginger. Simmer 5 minutes.
3. Meanwhile, cook 4 cups of Basmati Rice (I use a rice cooker). Spoon cooked rice into 9×13 pan (if it doesn’t all fit, you can use two pans, whatever sizes work to fit all the rice. Or, you can use less rice and have more topping.). Top with meatballs, spoon tomato mixture over meatballs. Bake for 20 minutes or until meatballs are no longer pink in center. Sprinkle with almonds.

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By Lana, March 13, 2008 8:58 am

Dave and Lauren both have the flu. Seems the flu shots were not effective this year. Yesterday morning, Dave went to the doctor and tested positive for the flu. A very kind friend, LaToya, drove him to the doctor. Thank you so much LaToya! (And thank you to Shar for being in your office and so quickly finding LaToya!) Lauren was feeling horribly and Carmen was asleep after staying up for much of the night and it was such a HUGE help to know Dave was being taken care of! Yesterday afternoon, I took Lauren to the doctor and she also tested positive for the flu. I am loading all of us up on Vitamin C and other good for you stuff!

A big thank you to my friend, Karen, for showing up with dinner! (Thin mints are my favorite Girl Scout Cookies!)

I reread some of my journal entries and wanted to clarify something I wrote. A few entries ago I mentioned that Dave and I are hoping to someday help families adopt, in Carmen’s honor. I also said that many of the families affected by Tay Sachs make it their life mission to search for a cure but that Dave and I are thinking of focusing on adoption support. In hindsight, I think saying that could be offensive to those families who are investing so much emotion, energy, time and money towards a cure. I am sure that for the rest of our lives, Dave and I will support the search for a cure. A variation of this disease has forever changed us and without a cure, will take our precious daughter. So, I apologize if I came across as downplaying the importance of the search for a cure mission. The families involved are amazing and unwavering in their dedication to this very, very important cause.

Last night Dave, Carmen and I watched American Idol. I have watched AI since the first season and look forward to Tuesday and Wednesday nights each week! Lauren goes to bed by 7pm each night but Carmen is often awake later so Carmen gets to experience American Idol! This season, I really like Brooke White, Michael Johns, David Cook, Jason Castro, Carly Smithson and the cutie-pie David Archuleta. I thought Chikezie did a great job this week too! Usually I only really enjoy one or two singers each season but this season I like half of them!

A little girl named Brooke from New Zealand lost her battle to Sandhoff disease this week. Sandhoff is similar to Tay Sachs. The funeral is tomorrow (Friday) and she would have celebrated her 2nd birthday on Saturday. Please keep Brooke’s family in your prayers.